I had a difficult week last week. All this time, the pain I've experienced has been mostly burning and just general discomfort. I usually compare it to getting something in my eye that's irritating. Annoying, yes, but not life altering.
But starting last Saturday, I felt a different kind of pain - a sharp kind of pain when I shifted in my seat or walked or wore jeans that were close fitting. I finally understand what a lot of the women who are in my class experience. And it really sucks. That pain has gone away for now, but I still worry that it's just under the surface.
I had a follow-up appointment with my specialist and she said that the inflammation has gotten better, but then why are my symptoms worse? She changed my treatment, so hopefully things will get better soon. I'm still trying to stay positive, doing some stretching and meditating, trying to eat healthier foods, and taking better care of myself in general. Stress exacerbates my condition, so I'm trying to eliminate that from my life as well (which is difficult these days).
Showing posts with label positive. Show all posts
Showing posts with label positive. Show all posts
Sunday, March 8, 2009
Wednesday, February 18, 2009
Finding support online.
I was thinking last night how lucky I am to live during a time where I can find support and resources online. And -- with the help of one list serv or website -- know that there are others like me who are struggling and searching, but finding ways to be happy even in the midst of all this sadness.
In the last couple of weeks, I joined a vulvodynia support group online and have found it extremely valuable (if you search on Yahoo Groups, you can find it and apply for admission) . I belonged to a vaginismus online support group before (and still am), but I also needed some support for just dealing with this chronic pain that prevents me from even thinking about dilating. I've posted a couple of times and within days (sometimes hours), I get responses back from other women who know what it's like, who offer up their support and advice. So I'm thankful for that.
I also joined the National Vulvodynia Association and will hopefully be volunteering for them at some point. I'm the type where if I'm DOING something, anything, it helps.
In the last couple of weeks, I joined a vulvodynia support group online and have found it extremely valuable (if you search on Yahoo Groups, you can find it and apply for admission) . I belonged to a vaginismus online support group before (and still am), but I also needed some support for just dealing with this chronic pain that prevents me from even thinking about dilating. I've posted a couple of times and within days (sometimes hours), I get responses back from other women who know what it's like, who offer up their support and advice. So I'm thankful for that.
I also joined the National Vulvodynia Association and will hopefully be volunteering for them at some point. I'm the type where if I'm DOING something, anything, it helps.
Labels:
community,
online,
positive,
support,
vulvodynia
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